Olivia Grace Guerrero came into the world on Sunday, April 24, 2016. Truly a one-of-a-kind gal, Olivia’s case was medically complex, and she remained in the NICU for the entirety of her short life, as her team worked to understand, treat, and diagnose her condition. Eventually diagnosed with “non-5q” Spinal Muscular Atrophy (SMA), Olivia passed away on July 10, 2016. She was and will always be our greatest gift.
Shortly after Olivia was born, we created a blog so that we could more easily share Olivia’s story with our friends and family as it unfolded. It began as a way for us to more broadly pass along the ever changing medical details, at a time when they were changing by the hour. Eventually she grew more stable and the days began to slow down. We continued to use the blog as a way to communicate with all those who loved her (and us), and now it remains a source of memories, photos, stories – her story. You can jump over to her blog to learn more about Olivia’s journey and ultimate diagnosis, read stories from Mom and Dad’s perspectives, and see endless photos and videos of our little girl.